JUNE 2019 Research Alert

This month we added five new studies to the Best Practice Database, the research repository for Best Practices, LLC. This month's new studies all deal with one topical area: Effective Patient Advocacy Group Collaboration. The five studies touch on an array of issues related to this issue. Key topical areas addressed in the studies include optimizing the advocacy structure; creating and maintaining effective partnerships with advocacy groups; technology and current trends; current regulatory and ethical issues related to advocacy and lessons learned about advocacy relationships.

The new Best Practices, LLC studies listed below under Newly Added Research explore how leading companies have made their operations more effective across these different areas.

	Download: Patient Advocacy 2020: Optimizing the Structure of the Advocacy Function (5560) Patient advocacy groups are critical partners for pharma as the industry seeks new and more effective ways to communicate with patient groups. This research covers current benchmarks on the structure and staffing levels that pharma is utilizing to increase their effectiveness with patient groups. Leaders can use this study to compare their structural approach with industry peers.
	Download: Patient Advocacy 2020: Optimizing Advocacy Partnerships to Improve Access & Boost Patient Voice (5561) Partnerships with patient advocacy groups are an effective way to reach specific patient groups. The study contains current benchmarks on the tools and tactics used to create and maintain effective collaborations with patient advocacy groups. The research also focuses on the measures used to evaluate the performance of the advocacy role.
	Download: Patient Advocacy 2020: Use of Technology, Current Trends & Future Direction (5562) The social platforms used by an advocacy group to interact with patients can reflect the reach and effectiveness of the organization. Best Practices, LLC undertook this study to provide benchmarks around effective platforms for informing patient groups. This research also identifies current and emerging trends in patient advocacy.
	Download: Patient Advocacy 2020: Ethical Boundaries & Regulatory Impact on Patient Advocacy (5563) The shifting regulatory landscape coupled with increased involvement of patient groups in key treatment and policy decisions is changing the advocacy relationship dynamics. This research establishes benchmarks around ethical boundaries and regulatory impact on patient advocacy initiatives.
	Download: Patient Advocacy 2020: Lessons Learned from Top Pharma Companies about Relationships with Patient Advocacy Groups (5564) As patient advocacy groups exert greater influence on key treatment and policy decisions, biopharmaceutical companies are intensifying their efforts to create and maintain relationships with these groups. This study examines the key lessons learned in partnering with patient advocacy groups to shape policies, improve access, and boost patient voice.